Neonatal Ethics Teaching Program - Scenario Oriented Learning in Ethics: Announcing the Diagnosis of Trisomy 21

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Title: Neonatal Ethics Teaching Program - Scenario Oriented Learning in Ethics: Announcing the Diagnosis of Trisomy 21
Authors: Boggs, S
Daboval, T
Ben Fadel, N
Moore, G
Ferretti, E
Date: 2018
Abstract: Delivering news to patients and their families can lead to emotionally charged conversations that are difficult for trainees to feel comfortable or effective in. Trisomy 21 (T21), or Down syndrome, is the most common viable chromosomal anomaly. Although prenatal screening exists, over 80% of T21 diagnoses continue to be made postnatally to unsuspecting parents who report a desire for better communication from healthcare professionals when they first receive the news of their child’s diagnosis.16 To better equip trainees to thoughtfully and professionally deliver a diagnosis of T21, we have designed a workshop founded on the principles of Scenario Oriented Learning in Ethics (SOLE) which introduces a framework combining current evidence on communicating life altering news with stated parent preferences. During the workshop, trainees will have the opportunity to practice using the provided communication framework with a standardized patient trained as a new mother. By personally working through a clinical scenario as well as observing workshop colleagues doing the same, participants will gain insight into what is effective as well as ways to troubleshoot encountered pitfalls in a safe and supportive environment. By pre-emptively practicing evidence-based communication, we hope to increase trainee comfort with critical conversations and improve parents’ feelings regarding the quality of communication and support provided while receiving real life T21 diagnoses.
URL: https://www.mededportal.org/publication/10575/
http://hdl.handle.net/10393/37944
DOI: 10.15766/mep_2374-8265.10575
CollectionCHEO - Publications
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